 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Linda,
I could not keep anything down even using the PEG tube. After losing about 60 lbs I aksed for TPN feedings through the mediport. I spent months feeding that way and still didn't gain wait for almost a year with about 4,000 calories a day. It takes time but I really had to work on the dehydration, too. I had 2-3 bags of fluid in my mediport for 4 months as well. I blacked out more than once right after radiation.
As a general rule I was told 1 month recovery for every week of radiation but I felt that was a joke until I found it to be a bit conservative even. I know everyone is different but Todd's circumstances really parallel mine.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
