Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Her Fentanyl dose could be a little light. I was up to 75 mcg and others here have had doses as high as 150 mcg. I had daily nausea for quite a long time post Tx. I suspect it may have been caused by constipation from the Fentanyl, radiation sickness or mucositus. Be sure that the nutritionist has a handle on the issue.
3-4 times a day breakthrough pain is fairly typical (I presume that these occur when she is trying to swallow or some other event). If not then her long term narcotics should be increased. Be sure to let the oncologist know these things - and give the pain a rating between 0-10 (10 being "unbearable). Morphine is a better choice than hydrocodone as it is much faster acting. 30 minutes for tablets and 4-5 minutes for the oral liquid form. It's also much more potent.
RT takes a lot longer to recover from than surgery.
I would speak with a physical therapist before using a TENS unit on the neck. Radiation will turn the tissue fibrous (permanently), so it may either have no benefit or make things worse.
She's still early in her post radiation phase, so this is typically the worst time. Like others have mentioned, I am a little surprised that she is not followed more closely considering her history (like every 6-8 weeks).
The clean scope is good news though and she should start turning the corner shortly.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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