| Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Barb,
I'm almost 5 months out of Tx and tell Mike that things do get better. He won't notice daily changes or even weekly changes but every once in a while he will bite into something and think.. boy I could taste that and eventually he will begin to taste things throughout the meal. That just happened to me a few weeks ago. I would rate my taste at 8 1/2 out of 10.
I haven't taken (or been prescribed) anything for my Dry Mouth and it's still the worst side effect I have. It is better than it was when Tx ended and it also affects our taste. I don't have to carry a bottle of water with me everywhere and I sleep without waking from it as well. I still can't sleep throughout the night but that's because of my CATS not radiation. I would rate my Dry Mouth as 7 out of 10.
The pain and stiffness also went away and that was months ago.
If he wants to ask more specifics about what he is going thru, just post and I'll tell him what happened to me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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