Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Marni, I have that too. I had tongue surgery then radaition and have had problems swallowing since so still get most of my nutrition through the tube. The swallowing issues are not helped by the tnogue being so sensitive to anything acidic, although I think it hasn't been desensitized either because I donm't swallow enough. I think it is a nerve that is just kid of permanently firing off differently after the surgery. It has actually showed up on both my PET scans but because there has been no change, the person reading the san does not think it is a sign of any kind of recurrent cancer and since I've had it since surgery (but it was aggravated by radaition), it no longer worries me.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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