R
Been away from the site for awhile, Brians been in the Tank or taking dives as they say, for 30 visits. And yes your right its a real hassle to take the trip m-f but so far its been worth it. We live an hour away from the hyberbaric treatment center and they have been kind enough to meet us halfway and pick Brian up and then they bring him most of the way home. That way I can work and leave for a short time to pick him up. Brians been out of work since May so living on one income is tough. So its been nice to run into people who understand and want to help. Brian and I have learned alot about truly king people are throughout this whole journey. Brian got a laugh from your email ( he's not one for getting on the computer. Glad to hear that you can eat spicy foods again. We go to Boston tommorow and hopefully he will have his trach removed it depends on how much healing has been done they are still worried about him having another bleed. He still has alot of swelling around his neck and face the have him on a steriod but every time he goes off it, the swelling starts backup. They can't give us a clear answer if this is going to be a chronic thing. The drs say they didn't all the side effects that he is having from the radiation. So its a wait and see situation.
So were hanging in there and waiting to see the light at the end of the tunnel
B


BOT stage IV SCC moderately diff, invasive. radiation 2 chemos. DX 06/06. Ended radiation 8/11/06. Bleed out from tonsil area from radiation necrosis 10/27/06.