"Above & Beyond" Member (300+ posts) Joined: Apr 2006 Posts: 378 | okay, that's a lot going on. I'd start with getting a CBC to check his blood counts and also make sure you are taking his temperature since they're assuming there's an infection present with the antibiotics. It would be nice to know what his white counts are.
The pain issue is complicated because it could be a combination of things. He's had steroids and is on a duragesic patch, plus there's the swelling. What dose of the patch is he on? Some people don't tolerate the patch and the headaches could be related to that. It could be that the nerves in his jaw are coming back after treatment. Jack used to describe it as feeling like bugs were crawling up his neck. Also ask about Neuronton as that helped Jack control the nerve pain that persisted after treatment.
I understand why you're scared and why you're thinking it's mets, that's a normal reaction. Every time Jack looks funny, I think he has mets somewhere. The CT scan and MRI haven't shown anything so that's good. My suggestion is that you write down every question you can think of and go thru each one when you call or visit the doctor. If I didn't do that I'd never remember to ask half of them. A
Hope this helps.
Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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