 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I had my first scan 6 weks after finishing radiation because my otolaryngologist wanted to weigh options regarding a neck dissection. I am lucky because I am allergic to IVP contrast so only a PET scan works for me. The area around my lymph nodes that received the most radiation lit up and the doc was more dilligent in that area on exam and told me there was some area of concern. I saw the PET scan (I get copies on CD) and it was alarming when I looked at but everything has resolved as of the last 5 PET scans. WHEW!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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