 "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | Dear rlm --
If you did not hear from your oncologist (or the oncology nurse) then call the patient support person at the hospital and make some waves.Every hospital has some sort of social service person, someone who deals with complaints or concerns, etc. -- if only for fear of malpractice suits -- and you or your caregiver need to involve them. You have a potentially serious infection which can affect your treatment outcome, not to mention your well-being, and it is not being treated. That is pretty close to malpractice in my book. Not to mention no effective pain relief!
If you have a GP (family doc) call him or her and try to get them to intervene as well.
Good luck, be forceful -- you have to be your own advocate in treatment and sometimes -- you have to get pretty aggressive about it!
Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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