Hello, I had a little more than 1/2 of my tongue removed and have the flap, which I have had surgery on since the initial time. It seems to want to lift up a bit, but the docs say that is okay, shows I am using it more. I eat anything I want, except for real hot spicy foods. I chew mostly on the side that still has the original tongue, I have tried to manuever food to the other side and use that side more but it is a chore to remember. In time, it will get better, I am still very aware of eating food out, being especially careful to take small bites and chew as much as I can, sometimes I still have a choking incident. But all in all, things are fine. I guess I didn't help you much, but just wanted to share. Take Care, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---