Thanks for your thoughts Darrell.
I did a very thorough search of the patient forum ( my eyes hurt!) and have discovered a few people who had tonsil-based cancer rads/chemo followed by neck disection. It seems like most of them are doing okay. It's disconcerning when people seem to disappear from the site without a trace but I suspect, sometimes at least, it's because they very much want to put this tough time behind them.
I've also done lots of research in the medical/scientific journals. From what I've read, the complete response at the primary site is a solid start even though not getting an "all clear" after rads/chemo only (quite a few people seem to) is disappointing and a bit scary.
Mary