Thanks for all the responses and of course, the support. I feel like such a whiney baby frown when I see what many have gone through. I am surely one of the luckier unlucky ones.

Eileen, I will have to ask Susan if she remembers since I only remember the $200+ quarters laugh .

Joanna, I am intested to hear who your Mr. Arrogance would suggest in Dallas. An oral surgeon Susan worked for has been involved in some type of fellowship at MD Anderson and he has been trying to help. Feel free to PM me.

Thanks again to all of you.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023