"Above & Beyond" Member (500+ posts) Joined: Jul 2005 Posts: 624 | Hi Alan --
Six weeks' out is where my husband Barry is and he still has some mucositis, although it is getting better daily. He needs pain meds to eat, but these are also getting less necessary. He didn't lose as much weight as you did but he lost quite a bit and needs to get it back, which he won't be able to do until he can eat more food more easily. The swallowing evaulation (my husband had his last week) really helps get a handle on things; he aspirates some too and the therapist will design execerises for him to improve this.
However, what I wanted to say is that you are about where you might be expected to be at this point -- progress seems really slow and it gets discouraging but it will start to get better. For some this seems to happen very quickly, for others, a longer drag -- but persevere. Try to exercise some very day -- lots of studies find this helps reduce fatigue from cancer treatment -- even if at first it's only a short walk.
Best wishes, stick to it! Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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