I too have terrible, disabling tinnitus, likely from the Cisplatinum.

Am feeling desparate and afraid. The annoyance is unbearable and I don't know how long I can tolerate it!

It seems to be just getting worse and my hearing is getting terrible.

Don't know what to do, but looks fairly hopeless from the information out there on the internet.

Any other information or hope?

PS: Have had millions of other "side effects" and things pop up but they are seem to eventually disappear smile Guess i was hoping this would have too...

I have neglected to be active on this board for a number of reasons, so my appologies to anyone I haven't kept in touch with. I'll update on the correct forum.


Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.