Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | I was still on the downhill slide at 3 weeks post Tx and I don't remember eating solid food until about 2 months post Tx. I didn't have a PEG so it all went down the oral cavity. My taste buds started to recover about one month post Tx and it slowly improved over several months. Like Kris, for some odd reason, I never lost the "coffee taste bud" and even though I couldn't drink hot coffee, Hagen Daz coffee ice cream and Carnation Instant Breakfast Espresso worked well for me. I had a lot of jones for different food items and my dogs gained a lot of weight when I discovered I couldn't eat them. You have to keep experimenting and also, like has been said, retrying things as this is a very dynamic time in recovery and things will keep changing. The first solid foods I remember eating were very rare filet mignon. Several weeks later I was able to eat pizza and salad. Pastas are still my favorites, but I have developed a liking for In-n-Out burgers and fries. I also found that carbonated beverages aided swallowing a lot more than plain water. I drank a lot of soda and carbonated water with lemon in it (and still do).
My experience was that different taste sensations came back at different times salt was the first and sweets were the last. Be patient.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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