 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Rolanda,
I am curious if your husband had cold sores before treatment. If so, the blisters could be related to that just from the stress of treatment.
I do not think it is the usual course to still be in so much pain after 5 months. I had a lot of radiation to the base of my tongue and both sides. I still have food tasting different by the day and a strange feeling towards the back on both sides of the tongue and my ENT says it is from the radiation.
I would consult with someone who deals with oral issues and especially oral cancer.
Good luck and I hope things improve by the day.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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