Bob & Laurie,

Welcome to the neighborhood. Believe it or not, you are at the worst point in this journey. Some things to do include elevating the head while sleeping, rinsing out the mouth regularly, get a humidifier close by as often as possible, take Guaifenesin in some manner, either liquid (i.e. Robitussin) or Humibid LA. If you opt for the liquid avoid drinking it or your hair will certainly stand up as you scream because it will really burn the throat.

The brown goo as I call it will subside but it may take a while like a few weeks or a few days. Just imagine Crytal Gayle singing "Don't it make your brown goo clear." because once it starts getting less brown, it will be much better all around.

Hang in there. It will get better.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023