 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Marica,
Can you have Pete describe the pain? I can not tell from the post if it is hurting while chewing and if it is teeth or TMJ pain. There are lots of options for either one. Either way it is more of a dental issue and there are specialists that can help. My wife works for one now and knows of someone at the University of Florida that is exceptional if that is close to you. I can email you the details if it is convenient. Otherwise, I believe she could help find someone in your area. (My wife works for the North Texas Center for Head, Face and TMJ Pain.)
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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