Len,
Hang in there. My hubby had and used only his PEG for nutrition for 5 months. I feel like he got it out too early because he lost more weight with the problems with eating and no taste. He is doing better now 5 1/2 months post treatment, but still mostly eats soups, no bread, some other things but besides choking on almost everything, he still has little-to-no taste in any food that he eats. It's pretty discouraging sometimes because it's hard to eat just to eat and not be able to taste. He is trying to maintain the weight, but believe me without the PEG it's very hard. He had tongue surgery and the max radiation (not IMRT), so that might be way he has still not taste.
Take care and God bless,
Debbie


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.