 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Len,
I had the same problem and quit eating anything citrus or any type of hard candies or throat lozenges. I also started scraping my tongue twice a day and it has returned to a lovely rose color.
You can get the tongue scrapers from your dentist. They are flexible plastic and have a regular side and a soft side. There is a gel you can apply first with your finger (if you can get past the gag reflex) and then you scrape your tongue. Be sure and start with the soft side. It gets all the crud off and eventually the bacterial sores are gone forever (or at least gone often with longer intervals between). The maker is Breathrx. I can send you one if you can't find them locally.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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