| Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Hi Eric, Your post brought back a vivid recollection of my 4 week post Tx experience. I struggled dramatically with the constipation issues (the mostly un-talked about side effect) and I now feel that the doctors could have managed that aspect of it a little better than they did. I never thought in my life that I would ever pray to God Almighty for regular bowel movements but I did (and it worked). It says in the Bible that we can be in prayer about ALL things and I tested this regularly.
I would start out by demanding better care from your doctors and nutritionist in that regard. If I had a PEG tube I probably would have taken Metamucil as well -fiber will help a lot. It is very important to insure your 2-3 liter daily water intake - dehyrdration exacerbates the situation. It amazed me how constipated one can get from just from a liquid diet! Be careful to avoid any binding agents like cheese, rice or bananas. Preparation H suppositories helped a lot in addition to dietary tweaking and the Pericolace. There are prescription medications they can give you as well.
It really didn't start to get better until I was able to get off of the pain meds - then the turn around (to normalcy) was rather dramatic. Hang in there - you are close to being at that point.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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