Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Hi Catwomen, I am having pretty much the same experience as Joanna. Salivary function is slooowly returning 9+ months post Tx. I still have dry mouth at night - (the doctors think I may be one of those that sleeps with their mouth open). A humidifier helps a bit. Like you, I had 2 rounds of Cisplatin and the full boatload of radiation for the right tonsil. I still have a little residual soreness, probably from the muscles being fried in my neck - the radiation oncologist warned me about some "texturing" of the muscles. I only notice it when I'm yawning.
It can take 1 1/2 years or more for full salivary function to return. Note that the gland behind the tonsil is probably gone for good so you won't have the same salivary function as before.
I can eat spicy foods and love salsa, no problem. All my taste buds are back now, although I don't like chocolate as much as before. I still don't do well with cookies, breads, chips, etc. Salty foods will exacerbate the problem. I always have a bottle of water handy but I did that before treatment also.
It sounds like you are doing really well for 6 weeks post Tx. I am very grateful I had access to IMRT.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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