 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Darrell,
Congratulations on this major milestone! You have a few rough days ahead of you but once you start eating, times will get much better. I started eating right away but they were trying to eliminate my job at work and the doc wouldn't let me go back until I started eating. I went back after two weeks and I had fried catfish and fried chicken the first day back. It was still mighty tasty but a bit rough without lots of liquid as I ate. I still do that, seven months later.
Water was the toughest thing to swallow and still is. Dr Pepper was all I could drink the first two months and I hear that is unusual from a lot of others. It went down good and soothed my throat. I was drinking about 10-12 cans a day and when I got my blood checked at the ER, I had a blood sugar level of almost 300. They (and I) freaked. I read something about sugar and cancer and I have not had a Dr Pepper or any soda since December. I guess it scared me.
Keep the humidifier going while you sleep. Sip any liquid you can as often as possible.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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