Brett, My husband was in this clinical trial, phase III. Like you, he was randomized to the control group. They followed his progress for a year. He is officially out of the clinical trial, but of course if anything comes up they want to know about it. We still see the same Dr we did when we were in the clinical trial, Dr Kies at MD Anderson. The thing about being in the clinical trial that I found really helpful is anytime we had a question, we could call our research nurse. She was great. Is he your DR? Brian, I am sure they would love to talk to you about this, as they are always looking for people to join this clinical trial.
Brett, my husband was Stage IV, TN2bMo, was upset about being in the control group also, but almost 4 years later is doing great.