Annabel,

Do you have a medical TEAM or are you the coordinator of everything? In my case, there was an oral surgeon, an otolaryngologist, a radiation oncologist, a medical oncologist, a social worker and a nutritionist on my team. A tumor board reviewed the plan of attach and approved it before anything happened. I found out dental insurance pays to pull out my teeth but not to put anything back in, even though I know of others on a different BC/BS plan that paid for implants as a medical necessity. It is tough but it sounds like you are really getting a rough deal. Is there a social worker in the oncology department that can help guide you to the resources you need?

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023