I do think that with time swallowing does get a bit better. I also think we learn to adjust and adapt to our "new" mouths and finally reallize that we will have to chew more throughly or drink MORE liquid while eating. That we no longer have the option of just "grabbing a bite to eat." I know when I'm in a grocery store and they are giving out their free samples I have to walk right on by. While eating is still very pleasureable for me, sometimes it is work too.

For any of you out there having eating or swallowing problems it might be a good idea to at least consult with a speech therapist. I know doing this was tremdous help for me. I learned a few "tricks of the trade" that were more than helpful during my first few months minus the feeding tube.

Having said all that, I still think that it is wise to request a barrium swallow if you're still feeling umcomfortable with the swallowing process after a while. My doctor told me on more than one occasion that it was "just the scar tissue making swallowing difficult" but still, I wanted to make sure that was all that it was. He was right, but after the barrium swallow, I felt more reassured and relieved to know that there was nothing more going on. We know our bodies better, or as well, as the Doctors we just need to pay attention to any changes going on. Sincerely, Donna


SCC first time 1989, with a diagnoses of 'cancer in situ' removed lesion, no other treatments.
SCC recurrence 1997 of tongue and floor of the mouth. Stage III /IV Hemmiglossectomy (removed over 60% of tongue/ floor of the mouth), free flap, modified neck, RAD and Chemo(cisplatin, 5fu) simutainously.
Cancer free 6, yes, six, years!