Okay, the PEG tube is in, the radiation mask is made (it went well and wasn't an issue with him), the dentist gave him an extra stitch and so we are waiting for him to be cleared before we start. They will speak to the hemo-onc about cisplatin-hearing loss concerns next week.
I realized this is all really happening when the pharmacist handed me a BOX of supplies and scripts...Like the kind you would use if you were moving house.
Also I've done my homework on everything ahead of time because I cope better with knowledge but I should have looked at a pic somewhere of a PEG tube because I was a little bit shocked by it..It's just so low tech looking and I didn't expect the dried blood around it, or the gastric juice. Reminded me of "Dune". I just do so much better when I know about these things and have bad dreams about them ahead of time and essentially just get over it.
Also I want to say hello and that I am so glad this site is here but deeply sad that we have to meet this way.