Platinum Member (300+ posts) Joined: Oct 2006 Posts: 383 | WTG Angie!!! It gets better every day from here!! Just stay hydrated and continue to eat. At the very least keep working your mouth and Jaws so they don't get real stiff on you. Trismus is a bear to deal with and it seems the more I keep movement going the better things are. Mornings are now the biggest challenge at 7 months out. It also seems that I can talk easily but when it comes to eating my mouth sure doesn't open like it used to. I had a speech therapist give me exercises which have really helped as well. I still get sores now and then. It's scary when they appear but it seems the better hydrated I stay, and the more I "swish" water, etc., the less likely I am to get sores. They also seem more prevalent around the scar tissue when they do appear. Best Wishes, Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
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