Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | Debra, I personally went downhill for several weeks post Tx but I am sure that the chemo had a lot to do with it. My wife was still able to do things and not provide 24/7 supportive care. some strategic planning and a little outside help will probably get you through it. I mostly slept a lot anyway. Like managing children, you have to make sure he gets his meds, fluid and nutritional intake. The most dangerous part is from this point to about several weeks post Tx and the narcotics he is on for pain have a lot to do with this (not to mention cancer fatique, dehydration, malnutrition and other issues). He could be unstable on his feet and may need help getting up or getting to the bathroom. Showers are tricky too. I took mine sitting down and planned them for the time of day that I had the most energy. Remove hazards where, if he falls, he won't injure himself. As Steve said you may qualify for IHSS (in home supportive services). Contact your county welfare department. Church groups are also really good at providing respite care if friends and family are not nearby. It really helps to have a network. This is a hard thing to do by yourself and it will take its toll on you. Treat yourself to some away time.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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