Hey Rose,
Also sorry to hear of all the troubles you and your husband are going thru. My husband began his journey at a local community hospital where an oral surgeon did tongue surgery and mod. neck dissections. He only took a few nodes and did not find cancer there and said he didn't need radiation. Exactly four months later he had a neck tumor that was very aggressive and his same doc did a rad. neck dissection but couldn't get it all. It was then that we got a referral to a major cancer center which was not long after I discovered this site. Had I known more then we would have gone immediately to a comprehensive cancer center and Dan would have had more aggressive and better treatment. At this time Dan can eat (he had a PEG for 5 months), however, still chokes and is never without a water bottle. It did get better but it took a while. Like Kirk Georgia says, please make sure you are at a good cancer center. We found out how very important that is.
God bless,
Debbie