OP Contributing Member (25+ posts) Joined: Jun 2004 Posts: 26 | Hi Gary, Thanks so much for the info. I have forwarded it to my sister to read in full. She stopped taking the medicine for two days (nystatin) because the pharmacy didn't have it in ... I insisted she pick it up from another pharmacy. I want her to read the article you sent me in full so she understands the seriousness. Myself today, did not feel the doctor expressed how serious this condition can become if the patient is not aware of it's seriousness. She also went out and bought a water pik today as recommended by the radiologist to keep the oral cavity, tongue and teeth cleaner. We picked one with a special tongue attachment and several settings for the strenth of the spray. She said it felt very good.
Thanks again Gary. I will keep you in my prayers. Many thanks. Betty
Caregiver to Sister, Woodstock, VT - 3/4 tongue removed & reconstructed w/forearm 5/21/04, some in the lymph nodes, neck dissection, brachy radiation in the hospital and now going through 2nd round radiation and to add cysplatin chemo. Stage II-III.
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