Dani,

Thank you for sharing your daughter's pictures. She is just adorable!

I am so sorry you had such a rough time. Nothing makes you feel more helpless than a child with a high fever. I think it was rougher than this whole cancer thing.

When my oldest was 6 months old, mom went on a camping trip with a bunch of girl friends. My dog was in the vet and it didn't look like he would make it and my boy had a fever of 103. I called the doc he said if it doesn't go down in 24 hours call. I made it for 24 hours with tylenol, wet wash clothes, worrying, etc. and called back. It was now at 103.4 and the doc said if it doesn't go down in 24 hours call back. In 24 hours it was over 104! I called him and as soon as he said if it doesn't go down, I unloaded. I said, look here you son of a b****, if you don't meet me at the ER now, I will come stick that phone down your throat. He quickly said yes...but when I got to the ER, as soon as I gave my name they leaned over and said, this is the guy. Soon a team of police officers converged and stood around me with nightsticks in hand! eek

I was calm and the fever broke as the doctor was examining my son and everything worked out. It was certainly tense a few times that weekend. By the way, my dog had to be put asleep the next day because his temp had gone up to 108 and his kidneys and liver started shutting down. I can't remember a weekend much rougher than that one.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023