 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Rosie,
You have already put into words exactly the message you want to relay and it is a beautiful one at that. Remember, the entire circle of family and friends gets the disease, not just the patient. I am sure Cati will be an inspiration to all of them just like she (and you) are to us. As I read your post I reminisced about my mother being here and reuniting her with a friend she hadn't seen for 50 years and how much love she enjoyed throughout her life. I know you will do an excellent job and if it gets emotional for you just listen in the background with all of us cheering you on...you go girl! You are certainly entitled to get emotional with all you have had to endure and live through. Remember we all love you and are standing behind you with our hands rested on your shoulder to give you all the support you need to deliver the message everyone should have the honor of hearing.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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