I have been very disappointed in SPHONC. They charge to join and all you get is a monthly newsletter that contains very little information. A friend of mine is their local guy and diligently tries to conduct a once a month support group, but only a couple of people show up.
This website is so far ahead of SPHONC. Their website ,if I remember correctly, does not even contain any cancer information.

Danny G.

Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.