So I receive a call from a surgeon's office this afternoon asking me to bring my mom in for an appointment tommorow. I ask why, and she asks "didn't the oncology nurse contact you?" Uh, no. She hasn't responded to my emails or calls that I started placing last Friday in an attempt to find out how the scan results were. In any event, I paged the nurse this time and she called me right back. Evidently there are dilated pancreatic and liver ducts. I don't know what that means. Evidently there's no mass, but possibly a stone(s). They want the surgeon to take a look to determine if any other tests are necessary and to figure out what's causing this. Mom is in tears, understandably so. Her recovery has been pretty rough. She's still tube feeding, has had neurologic trouble associated w/chemo, various infections, significant weight loss...I don't know if this is more cancer or what the hell it is. Is this a normal path for oral CA to take? I've got to stop speculating and calm down.
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice. Died 10/13/15. What a long and difficult journey.
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