Oscar and Jenna,

My husband (had induction chemo followed by 7 weeks of IMRT and chemo) and is about 10 weeks post-treatment and doing well except for anemia. He got bad mouth sores and severe mucositis by around week 5 or 6 and they lasted for some time after treatment. He got his first mouth sores during the induction chemo but got them pretty well under control until after the midpoint of chemo/radiation. We did everything "right" and it was still really rough. Some people's mouths just break down more and some get bad mucosities no matter how much they rinse. His mucous was so bad he got a suction machine. He was on fentanyl which helped. The good news is that he is so much better now and his mucous is fine and he has no pain. He is finally eating pretty well. It seems endless and so scary at the time when you have strong side effects (and very difficult at times for your caregiver) but it does end and get better.

Lots of positive thoughts going your way from me- Sophie T.


Sophie T.

CG to husband: SCC Stage 4, T4, N1, M0; non-smoker and very light social drinker; HPV+
induction chemo begun 7/07; chemo/radiation ended 10/10, first cat scan clear; scan on 5/9/08 clear, scan on 10/08 clear; scan 1/09 clear; scan 1/10 clear; passed away July 2, 2016