Robin was never offered a PEG before treatment,and when he started we never invisaged that he would need one because he bounced back so easily from his surgery.By day 15 Robin hadn't eaten for 14 days and hadnt been able to drink any water or anything else for a week.He lost huge amounts of weight and by the time he was admitted to have a PEG fitted he was very ill.I was angry because being a member of this forum i had realised that this could have been avoided if his PEG had been in place before tx started.As Rob had both sides of his tongue,both sides of his neck,and the floor of his mouth irradiated it seems in hindsight that he would ,almost certainly have eating and drinking issues but i realised that some hospitals dont offer this as a matter of course.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.