 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Linda,
I did not have a tube but nausea was my worse enemy. Nothing they gave me seemed to help. Everyone can react differently to the same meds because there are so many variables to factor in. I fell behind often with my water and "food" and was treated at the ER 3 times for dehydration before I finally came out of that dark tunnel. I eventually stopped all my meds and decided dealing with the pain was better than dealing with the nausea. The only advise I can offer is to make sure he drinks his water and food DAILY. Don't let him fall behind one day because he won't make it up. Keep pestering his docs for different meds and ask for small amounts to see if they will work. I could open up a small pharmacy with my unused meds.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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