Hi Lyle,

I remember you from before. You were considering consulting with my ENT I think. Where did you end up being treated? Whereever it is, you need to speech and swallowing therapy and also maybe some connection to social services in your area that can help you considering you are barely able to speak right now. You may need to kick up a little bit of fuss to get those things to happen if you weren't treated at a CCC and are "in the middle of nowhere". I assume you are going back to the doc since the stitches have become infected? Make a fuss then about the other things you need,

I assume they removed your tongue because they thought you had a real chance of surviving the cancer if they did that, and I can imagine the mixed feelings you must have about survival with as many quality of life issues as that creates. But if you can get some speech and swallowing therapy and some support in your life (it wouldn;t hurt to talk to a counselor who has experience counsleing cancer patients dealing with these issues as well), you might wake up one morning and realize life is still sweet.

I don't know how close you are to me, but feel free to send me a private message if you were treated nearby and maybe I can help somehow.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"