 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I had 35 IMRT's concurrent with 3 cisplatin treatments. I started feeling the effects during week 3. Nausea was the worst because it (no feeding tube) prevented me from downing the right amt of cals and water. Not understanding what was happening to my body I continued to get worse. I would go to the ER and get fluids and try to rebound but it would only last a week or 2 before I would land back in the ER. Nobody could get a handle on the naseau until a week after treatment ended and I had lost 30 pounds did they put a tube through my nose. I had it in 10 days before I pulled it out myself BUT it got me over the naseau hump and I have recovered greatly since then. I also found Carnation Instant Breakfast VHC which has 560 cals in the same 8 oz size which has helped a lot as well.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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