Debra,
I had my feeding tube put in at MD Anderson and my PEG was truly my best friend when I needed it. Although I was completely dependent on it for nutrition for a good while, it was no problem using the tube. I would just hang up the bag at home while I read the paper at the breakfast table or watched TV in my easy chair, and let it fill me up. Then I began going back to the office and I kept a feeding tube in the refrigerator and hung it on a nail and "ate" while I was at my desk. As I write this I still see that nail above me.
Some of us like myself and Brian Hill had the PEG for several months even after the treatments were over. Other people get back to eating more quickly...you never know...plus, I had conventional radiation and chemo, not IMRT. With the PEG under my clothes I took walks, went to work, eventually played golf and even worked out. It was not very intrusive for me and I got used to sleeping on one side.

As I got back to eating, I slowly weaned myself from the tube. I also found it very useful for medication as well when it was too difficult to swallow a pill: I would dissolve a couple of Vicodin in water and shoot it right into the tube with no problem.

Best of luck.

Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.