My husband just finished his treatment today after a total of 35 XRTs, 1 lrg dose cisplatin, 3 low-dose carboplatin and taxotere and 1 lrg-dose carboplating and taxotere.
His last week was the worst he had suffered through. Not to say he didn't suffer with the mucocytis, but he managed to get through this entire thing without a PEG tube. In the end, I would say to anyone going through this, GET THE PEG TUBE!!!!
This past Monday he did have to be admitted to the hospital because of the severe pain. I believe that this could have been avoided if his pain was managed better. He ended up getting 150 mcg of Fentanyl intradermal patches and IV dilaudid. He had been taking Fentanyl and Roxanel (morphine by mouth), but by the time they prescribed this to him, he was in too much pain to even get the Roxanel down.
At this point, he is soley on Fentanyl and Roxanel and is doing much better after just 3 days in the hospital and getting some foods down. His is very neutropenic right now, so we have to watch this very closely.
There is light at the end of the tunnel!!!!!!