Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Sharon, how awful about the infection and pain from your PEG. I think my tube is about 18 or 19" long too. A shorter one would be harder to use for the feeding I do which is gravity feed through a syringe. With it being as long as it is, I can hold the end up and out quite a bit which helps the food flow downward frmo the syringe and allows me to pour stuff in easily. Also when I want to remove the syringe, I fold the tube in half about a half inch underneath the opening to prevent stuff from sloshing back out. All of this seesm easy to do with the length I have and I think a shorter one would make it harder. But maybe that's just ebcause I have gotten used to this length. I know it seems wierd to have this long thing dangling from your body when you take a shower but you do get used to it.....
I hope your replacement PEG works better.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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