 Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Cindy, yes, this is what I went through. Except I had a PEG ready for the moment all that stuff suddenly got very bad. Is he getting a PEG tube in soon?
What I did that also helped was I rinsed my mouth with water/baking soda and a little salt every hour at least. I also was prescribed something called "Gelclair" which helped for a while (then it started stinging my mouth too) and I had a swish and swallow rinse that I used and then a numbing swish and spit one that calmed the worst of the pain at times. I assume your Dad has been or can be prescribed these things--theya re fairly common for treating patients going through this.
I also started taking prescription painkillers around week 3--is your Dad taking something so his pain is controlled?
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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