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#45217 07-16-2005 10:56 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | First of all, I would wait until he is actually in less pain. I am six weeks out from rad. and the mouth pain I have is still pretty bad. I am on oxydose a liquid form of oxycontin that you have to take every 3 hours). Although remembering to take it (and needing to wake up in the middle of sleep at night to take it before I get in serious pain) is kind of a hassle, what I like is I can go from none at all during the day (if I am drinking enough liquid to keep my mouth moist and not doing anything like teethbrusing that irritates my sore spots I can go a couple of hours after 3 hours is up sometimes without needing a new dose) to taking more at night when I tend to have breakthrough pain, as well as more sever drymouth whivh agravates the sore spots. In general I take 5 mg doses during the day and 10 mg doses when I'm sleeping. My doc said I can go up to 15 if I need it for pain at night and I seem to need it MORE lately, thbough I think this is just ebcause my body has adjusted to the oxy and so i need more to get the same effect now.
I haven't really noticed any withdrawal symptoms on days when I go up or down in amount so far. Anyway, my original point was meant to be that although I can see some of the sores in my mouth healing, I still have a couple of painful spots, espcially at night, and I don't think I'm ready to go off it entirely yet. So it may be you shouldn't yet worry about the tapering off. The worst mouuth pain I had was about 1-3 weeks after rad.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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