I can't answer your questions either - no tongue involvement - but would like to welcome you Doreen, Lee and James to the site. I agree that we need to have 'been there' to fully appreciate the impact of oral cancer and its after-effects on our lives. Although my taste is minimal, I am able to eat and talk normally and I am very thankful for that.
I send you best wishes for your recovery and hope, James, that your ENT will be able to free your tongue surgically.
Love from Helen