Nicki,

I am so excited to hear Tom is nearing the end of this wild ride! As I read your posts, I vividly remember those days well. I was hospitalized with strange funal infections and other infections. I remember one time they put me on morphine and as always, I start babbling and rambling incoherently and as soon as I said something totally ridiculous, I realized I was on morphine and the nonsensical statement was understood as such by me. Kind of a snap back to reality with a little smile and giggle thrown in. I kept myself entertained for hours when I was alone eek .

At this point in my treatment, I was up to 3 bags of fluid a day and it went on for about 4 months though my port. Sad to say, I was "happy" when I felt like I had only aged 10 years.

Things will get a little rougher for a few days and then before you know it, the good days will happen more often and the bad days will just drop by unannounced every now and then.

You are a dear! Tom is so fortunate his "nurse" is close by. I hope you are getting plenty of rest.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023