Hi Nicki,
I was sick a lot in the end of treatment. Lost over 60 lbs and got very weak also. It's actually fairly common but hard to watch. Like others have said this is the home stretch and it might continue to get worse for several weekd post Tx. The thing to remember is that this is to be expected - it is not a sign of worse things going on. My second chemo Tx was far worse than the first. They decided to skip the last one altogether (I was originally scheduled for 3 Cisplatin treatments). I also had to be rehydrated a couple of times, which always makes you feel better. It is vital to stay on top of the 2-3 liter of water a day rule because the kidneys can be damaged from the chemo if the toxicity levels get too high.

The doctors have to do a better job managing the nausea. Has Tom tried compazine suppositories? They worked well for me when I couldn't keep anything down. One of the most powerful anti nausea drugs, Zofran, only works for a few days at a time so you have to keep shifting around to different drugs to control it. It surprised me how many people in oncology didn't know that.

I have put half the weight back on and I'm feeling pretty good these days - just had a clean 22 month post Dx exam and after the next one in December, I will be moving to 3 month intervals. Hang in - believe it or not, Tom is on the brink of turning around. Progress will be slow - measured in 3 week intervals.

Congratulations! - you got post #1000.


Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)