Carol in RH, Go ahead and give them this forum link! If we can help ANYONE I think we would. Collectively there are more patients here than many doctors would see in several lifetimes. They probably could use some real-time survivors input.

ALSO remember that we shouldn't put ANYTHING on the radiation burned skin unless the radiation people know about it. There are some things that will make it worse.

Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.