Erik,
I have been exhaustively searching all known proton therapy centers and there none close to you. Where will you be receiving your treatment?

If a doctor apologized to me for not having a particular treatment available - I would be running for the fire exit. What I hear them telling you is that you are going to receive a treatment protocol that is 10-20 years old.

I haven't been able to find any references for the use of PBT in conjunction with XRT.

Someone else mentioned the same therapy (proton - other than PBT)on the site and I have not yet found anything other than "Proton Beam Therapy". Are you sure they said "proton" and not "photon" - there is a huge difference.

Geographics shouldn't be a consideration. MD Anderson and I am sure LLUMC have facilities to accomodate you and oftentimes families as well. They know that most patients are not from their geographic location.

Whatever path you take, you want the one that gives you, first and foremost, your best chance for survival. Secondary to that has to be quality of life issues.