Brian,
Yah, the drs are pretty horrible here, we have been fighting with them since day one, but they are the only ones that are close by that our insurance covered. They implanted the PEG tube about 5 days before he started treatment, the GI tried to get him a nutritionist, our insurance denied it, so they sent us home and told us to feed him 6 cans a day of Ensure plus when he couldnt eat. We feed him through the 60cc syringe, slowing filling it up and giving him 2 cans at one sitting three times a day (this was before he started to become nauseated). It makes sense that he would get sick since we are filling his stomach up so quickly with fluid, but that is what we were told to do (and what the nurses did to him when he was in the hospital). This whole experience has been a nightmare, with no one communicating with us about anything and none of the drs communicating with each other. The radiation doctor never talks the the chemo doctor about treatment, the status of his health or blood count, anything. We learned that after about two weeks and became the people that had to relay all the information. It is totally horrible. I would love to take him somewhere else but our hands are tied. I just hope this is all over with soon, after three severe burnings, four severe infections and two bouts of dehydration, I dont think he can go through this again.
Thanks again for the help, you dont know how much we need any information we can get.
Cherie